Thursday, May 23, 2013

COAM Podcast #3

May16 th, 2013 
Episode 2


Question of the week: What do you do for wandering?
Challenge of the week: Take time for you!

Podcast Topics:

Wandering/Eloping:
www.awaare.org
http://sheriff.deschutes.org/contact-us/
Project Lifesaver (541) 388-6501
http://www.projectlifesaver.org/

Self Care - Take Care of you!:
http://www.armystudyguide.com/content/army_board_study_guide_topics/guard_duty/guard-duty-study-guide.shtml

Take a break on ASO:
http://autismsocietyoregon.org/resources/take-a-break-on-aso/
Upcoming Events…..
 .
Events and things to look forward to: 

COAM Dinner will be June 14th. For more information check out the facebook event:
https://www.facebook.com/events/100818963457034/
Or you can e-mail michelle at michelle@codsn.org

The dates fore the Debra McLean training have been changed to June 14th and 15th.  For more information contact the Central Oregon Disability Support Network. www.codsn.org

Parents and Caregivers of Children Affected by a Disability

Redmond Group
The second Tuesday of every month
6pm
Manzanita Building
(1212 NE 5th St)
Childcare provided FREE OF CHARGE

Bend Group
The fourth Tuesday of every month
6pm
Abilitree
(2525 NE Twin Knolls Dr)
Childcare provided FREE OF CHARGE
(this group is bilingual)

SIBZ KNECT
(a siblings of children affected by a disability support group run BY sibs FOR sibs)
The fourth Tuesday of every month
6pm
Abilitree
(2525 NE Twin Knolls Dr, Bend)
Childcare is provided FREE OF CHARGE
(suggested age 10+)


There is a used book sale with a great selection at the Bend Community Center Thursday May 23rd through May 25th. It is a fundraiser for the United Senior Citizens of Bend. 
Join the East Cascades Audubon Society in the Old Mill District Saturday May 24th for guided bird walking along the deschutes river. WShether you are beginning or advanced birder everyone is welcome. The event is free, and binoculars are available for check out. 

Music:

Monday, May 20, 2013

In Support...

The Autism community has lost three angels, who so quickly sprang from their homes to explore their world.

At times like these, you see the true nature of the digital world. There has been digital trolls using the stories for their own greed. Manipulating the struggles of the community into ways of generating money making clicks for themselves.

As my Mother has tried to teach me, God will get take care of the vengeance in this matter.

Before you yell at the TV at these parents, let me show you a section of the Autism Wandering Alerts Response Education website (www.awaare.org)

According to data released in April 2011 by the Interactive Autism Network (IAN) through the Kennedy Krieger Institute (KKI):
  • Roughly half, or 49%, of children with a autism attempt to elope from a safe environment, a rate nearly four times higher than their unaffected siblings
  • More than one third of children with autism who wander/elope are never or rarely able to communicate their name, address, or phone number
  • Two in three parents of elopers reported their missing children had a “close call” with a traffic injury
  • 32% of parents reported a “close call” with a possible drowning
  • Children with ASD are eight times more likely to elope between the ages of 7 and 10 than their typically-developing siblings
  • Half of families with elopers report they had never received advice or guidance about elopement from a professional
In 2012, the National Autism Association found that from 2009 to 2011, accidental drowning accounted for 91% total U.S. deaths reported in children with autism subsequent to wandering, and that 23% of total wandering-related deaths occurred while the child was in the care of someone other than a parent. 

At times like this, it's easy for my parents to sit on their couches and say, "How could they let this happen? Didn't they know?"

The parents of these three children have been living lives you cannot begin to comprehend. These parents are protectors, providers, adovcates, AND parents. Their entire lives are lived in locked down, in the attempt to prevent such tradegies.

This is not a time for judgement, it is a time for compassion. It is time for us all to gather around these families in support.

On behalf of the parents of the spectrum in Central Oregon, all these families are in our thoughts.

Thursday, May 16, 2013

COAM Podcast #2

COAM Podcast #2

Listen to it, and enjoy!

COAM Podcast #2 Shownotes

May16 th, 2013 
Episode 2


Question of the week: How do you add joy to your day?
Challenge of the week:Embrace the dropped ball!


Podcast Topics:


Treadmill Dance Guy, and adding joy to your day…..
How do you add joy to your day? Tell us!
https://www.youtube.com/watch?v=dLfUgXcvq4g

Upcoming Events…..
 .
***UPDATE***

The Debra McLean Training have been changed to June 14th and 15th. The location is yet to be determined .

 
Facebook Event for the June 14th COAM get together:
https://www.facebook.com/events/100818963457034/
To Register for the Music Therapy:


Support group schedule:
Parents and Caregivers of Children Affected by a Disability

Redmond Group
The second Tuesday of every month
6pm
Manzanita Building
(1212 NE 5th St)
Childcare provided FREE OF CHARGE

Bend Group
The fourth Tuesday of every month
6pm
Abilitree
(2525 NE Twin Knolls Dr)
Childcare provided FREE OF CHARGE
(this group is bilingual)

SIBZ KNECT
(a siblings of children affected by a disability support group run BY sibs FOR sibs)
The fourth Tuesday of every month
6pm
Abilitree
(2525 NE Twin Knolls Dr, Bend)
Childcare is provided FREE OF CHARGE
(suggested age 10+)



Embrace the dropped ball….


I Wanna Holler (But The Town's Too Small) by The Detroit Cobras is licensed under a Attribution-Noncommercial-No Derivative Works 3.0 United States License




Easy Lemon by Kevin MacLeod is licensed under a CC Attribution 3.0.
http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1200076.
Permissions beyond the scope of this license are available at http://incompetech.com/music/royalty-free/licenses/.

Thursday, May 9, 2013

COAM Podcast #1

Here it is: The COAM Podcast #1
The Pilot!

Check it out here:
https://www.youtube.com/watch?v=ms2pQ9z3Ckg

COAM Podcast #1: Show Notes

May 9th, 2013 
The Pilot


Question of the week: Do you find mainstream parents don’t “get it?”
Challenge of the week: Send us a picture of what you did for yourself this week


Podcast Topics:


Mainstream Parents Just Don’t Get It…..
Do you have “mainstream parent” friend who just don’t speak the same language you do? Let us know


Upcoming Events…..


Normal is Just a Dryer Setting…..
https://www.youtube.com/watch?v=n0aSEEwRxxU


New Services…..
The e-mail address is: ASDPEERTOPEER@GMAIL.COM


Take Care for You, You Deserve It….
http://www.autismconsortium.org/blog/detail/self-care-is-not-selfish-finding-a-way-to-take-care-of-yourself


Tarter Sauce…..
http://www.autism-pdd.net/testdump/test11081.htm


Music:


Ambler by Kevin MacLeod is licensed under a CC Attribution 3.0.
http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1300019.
Permissions beyond the scope of this license are available at http://incompetech.com/music/royalty-free/licenses/.


Move Forward by Kevin MacLeod is licensed under a CC Attribution 3.0.
http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1300018.
Permissions beyond the scope of this license are available at http://incompetech.com/music/royalty-free/licenses/.


Batty McFaddin by Kevin MacLeod is licensed under a CC Attribution 3.0.
http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1200003.
Permissions beyond the scope of this license are available at http://incompetech.com/music/royalty-free/licenses/.


Pinball Spring by Kevin MacLeod is licensed under a CC Attribution 3.0.
http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1100741.
Permissions beyond the scope of this license are available at http://incompetech.com/music/royalty-free/licenses/.


Easy Lemon by Kevin MacLeod is licensed under a CC Attribution 3.0.
http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1200076.
Permissions beyond the scope of this license are available at http://incompetech.com/music/royalty-free/licenses/.


Jaunty Gumption by Kevin MacLeod is licensed under a CC Attribution 3.0.
http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1300017.
Permissions beyond the scope of this license are available at http://incompetech.com/music/royalty-free/licenses/.


Montego by Kevin MacLeod is licensed under a CC Attribution 3.0.
 http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1100808.
Permissions beyond the scope of this license are available at http://incompetech.com/music/royalty-free/licenses/.